Orphan

Insights on access environment for innovative orphan therapies in China.
Jun
05
Accessing Innovative Orphan Therapies in China: Local Advancements

Accessing Innovative Orphan Therapies in China: Local Advancements

These local initiatives have developed unique early access programs and multi-level funding models for orphan therapies, addressing the core issue of covering high-cost rare disease drugs not included in the national catalog.
3 min read
Oct
25
Wonder Sir Founder on the State of Rare Disease Patient Organizations in China

Wonder Sir Founder on the State of Rare Disease Patient Organizations in China

This is the last part of my conversation with Wonder Sir founder Chen Yiwei. You can find our interview'
5 min read
Sep
27
Wonder Sir Founder on Pharma Success: The Importance of Early Investment and Trust in China

Wonder Sir Founder on Pharma Success: The Importance of Early Investment and Trust in China

“In my capacity as a researcher, I've had experience in both scientific research and drug development. Additionally, as
6 min read
Sep
13
Wonder Sir Founder Chen Yiwei on China’s Rare Disease Definition and Recent Policy Boost for Foreign CGT Investment

Wonder Sir Founder Chen Yiwei on China’s Rare Disease Definition and Recent Policy Boost for Foreign CGT Investment

Motivated by a profound sense of purpose and deeply moved by the suffering of Chinese rare disease patients, Chen Yiwei,
6 min read
Jul
19
Chinese Organization for Rare Disorders Founder Kevin Huang: China is Focusing on Solving Orphan Drug Access Issues

Chinese Organization for Rare Disorders Founder Kevin Huang: China is Focusing on Solving Orphan Drug Access Issues

On a beautiful Wednesday morning, just after celebrating July 4th, I sat down with Kevin Huang, the visionary founder of
9 min read
Jun
21
Navigating China's Access Landscape for Orphan Therapies: Insights into Funding Pathways

Navigating China's Access Landscape for Orphan Therapies: Insights into Funding Pathways

Welcome back to the final installment of our three-part series exploring China's access landscape of rare disease therapies.
12 min read
Jun
07
Understanding China’s Access Environment for Orphan Therapies: Advancing Policies and Diagnosis & Treatment Capacities

Understanding China’s Access Environment for Orphan Therapies: Advancing Policies and Diagnosis & Treatment Capacities

In our previous installment, we delved into the distinctive characteristics and commercial challenges surrounding rare diseases, highlighting a comprehensive solution
10 min read
May
24
Understanding China’s Access Environment for Orphan Therapies: 3 Key Considerations

Understanding China’s Access Environment for Orphan Therapies: 3 Key Considerations

Biopharmaceutical companies face distinctive challenges when it comes to developing and commercializing treatments for rare diseases, as these conditions affect
6 min read